End-of-life care - Dignity in Dying

info@dignityindying.org.uk - 020 7479 7730

“As a child there existed in my mind a nagging fear about this thing called death. As I have become older, I want to give an assurance to the people I love that the circumstances of their death will be 'good', to be celebrated, and their final hours will be reflective of life well lived.”Jo Brand, Dignity in Dying Patron
“We live in a free society with all the choices that go with it. We choose when to marry, have children, what treatment we should have, where to live, who to consult for advice, in fact how we should live our lives. This should include the opportunity to choose the time we die.”Simon Weston OBE, Dignity in Dying Patron
“As a child there existed in my mind a nagging fear about this thing called death. As I have become older, I want to give an assurance to the people I love that the circumstances of their death will be 'good', to be celebrated, and their final hours will be reflective of life well lived.”Jo Brand, Dignity in Dying Patron
“Being incapable of helping a loved one to die when they are at the end of their life, suffering and asking for help is undignified and wrong, and I know this having witnessed it myself at close hand.”Zoe Wanamaker, Dignity in Dying Patron
“As a child there existed in my mind a nagging fear about this thing called death. As I have become older, I want to give an assurance to the people I love that the circumstances of their death will be 'good', to be celebrated, and their final hours will be reflective of life well lived.”Jo Brand, Dignity in Dying Patron
“I see it as almost inevitable, that society will become more understanding, and more sophisticated, about assisted dying. As with suicide, it is right to strive to find better options, but when the alternatives have run out it must surely be wrong for society to insist that people suffer.”Nick Ross, Dignity in Dying Patron
“I see it as almost inevitable, that society will become more understanding, and more sophisticated, about assisted dying. As with suicide, it is right to strive to find better options, but when the alternatives have run out it must surely be wrong for society to insist that people suffer.”Nick Ross, Dignity in Dying Patron
“I believe that the exercise of free will concerning the end of life, and the timing of the end of life, is an essential human freedom. I believe that while religious dogma may dictate or limit the choice of believers it should not be imposed on others.”Rabbi Dr Charles Middleburgh, Dignity in Dying Patron
“I believe that decisions about the timing and manner of death belong to the individual as a human right. I believe it is wrong to withhold medical methods of terminating life painlessly and swiftly when an individual has a rational and clear-minded sustained wish to end his or her life.”Professor A C Grayling, Dignity in Dying Patron
“I endorse the work of Dignity in Dying because I believe passionately that any individual should have the right to choose, as far as it is possible, the time and the conditions of their death. I think it's time we learned to be as good at dying as we are at living.”Sir Terry Pratchett, Dignity in Dying Patron
“Being incapable of helping a loved one to die when they are at the end of their life, suffering and asking for help is undignified and wrong, and I know this having witnessed it myself at close hand.”Zoe Wanamaker, Dignity in Dying Patron
“Being incapable of helping a loved one to die when they are at the end of their life, suffering and asking for help is undignified and wrong, and I know this having witnessed it myself at close hand.”Zoe Wanamaker, Dignity in Dying Patron
“I wish to be treated as a responsible adult and believe that people should be legally able to register their wish for an assistance with suicide, if needed. I support Dignity in Dying primarily to help change the law on assisted suicide.”Sir Michael Holroyd CBE, Dignity in Dying Patron
“I support Dignity in Dying because I care about suffering and want the law changed so that those who presently suffer terrible deaths will in future have the option to end their suffering through ending their lives at a time and in the manner of their choice.”Lord Joffe, Dignity in Dying Patron
“I endorse the work of Dignity in Dying because I believe passionately that any individual should have the right to choose, as far as it is possible, the time and the conditions of their death. I think it's time we learned to be as good at dying as we are at living.”Sir Terry Pratchett, Dignity in Dying Patron
“I see it as almost inevitable, that society will become more understanding, and more sophisticated, about assisted dying. As with suicide, it is right to strive to find better options, but when the alternatives have run out it must surely be wrong for society to insist that people suffer.”Nick Ross, Dignity in Dying Patron
“We live in a free society with all the choices that go with it. We choose when to marry, have children, what treatment we should have, where to live, who to consult for advice, in fact how we should live our lives. This should include the opportunity to choose the time we die.”Simon Weston OBE, Dignity in Dying Patron
“I believe that decisions about the timing and manner of death belong to the individual as a human right. I believe it is wrong to withhold medical methods of terminating life painlessly and swiftly when an individual has a rational and clear-minded sustained wish to end his or her life.”Professor A C Grayling, Dignity in Dying Patron
“I support Dignity in Dying because I care about suffering and want the law changed so that those who presently suffer terrible deaths will in future have the option to end their suffering through ending their lives at a time and in the manner of their choice.”Lord Joffe, Dignity in Dying Patron
“I believe that decisions about the timing and manner of death belong to the individual as a human right. I believe it is wrong to withhold medical methods of terminating life painlessly and swiftly when an individual has a rational and clear-minded sustained wish to end his or her life.”Professor A C Grayling, Dignity in Dying Patron
“We live in a free society with all the choices that go with it. We choose when to marry, have children, what treatment we should have, where to live, who to consult for advice, in fact how we should live our lives. This should include the opportunity to choose the time we die.”Simon Weston OBE, Dignity in Dying Patron
“I endorse the work of Dignity in Dying because I believe passionately that any individual should have the right to choose, as far as it is possible, the time and the conditions of their death. I think it's time we learned to be as good at dying as we are at living.”Sir Terry Pratchett, Dignity in Dying Patron
“I endorse the work of Dignity in Dying because I believe passionately that any individual should have the right to choose, as far as it is possible, the time and the conditions of their death. I think it's time we learned to be as good at dying as we are at living.”Sir Terry Pratchett, Dignity in Dying Patron
“I support Dignity in Dying because I care about suffering and want the law changed so that those who presently suffer terrible deaths will in future have the option to end their suffering through ending their lives at a time and in the manner of their choice.”Lord Joffe, Dignity in Dying Patron
“Having seen my father die, it became very clear to me that we as society need to grasp the nettle and deal with this contentious issue in a way that is humane and acceptable to the majority of right thinking people.”Matthew Wright, Dignity in Dying Patron
“As a doctor for over 35 years, I became increasingly aware of the failure of even the best care to deal with the suffering of some patients. The present clinical, ethical, and legal fudge - and a law which is discredited in practice - is dangerous for patients and also for professionals.”Professor Raymond Tallis, Dignity in Dying Patron
“I see it as almost inevitable, that society will become more understanding, and more sophisticated, about assisted dying. As with suicide, it is right to strive to find better options, but when the alternatives have run out it must surely be wrong for society to insist that people suffer.”Nick Ross, Dignity in Dying Patron
“I believe that decisions about the timing and manner of death belong to the individual as a human right. I believe it is wrong to withhold medical methods of terminating life painlessly and swiftly when an individual has a rational and clear-minded sustained wish to end his or her life.”Professor A C Grayling, Dignity in Dying Patron
“I support Dignity in Dying because I care about suffering and want the law changed so that those who presently suffer terrible deaths will in future have the option to end their suffering through ending their lives at a time and in the manner of their choice.”Lord Joffe, Dignity in Dying Patron
“As a child there existed in my mind a nagging fear about this thing called death. As I have become older, I want to give an assurance to the people I love that the circumstances of their death will be 'good', to be celebrated, and their final hours will be reflective of life well lived.”Jo Brand, Dignity in Dying Patron
“We live in a free society with all the choices that go with it. We choose when to marry, have children, what treatment we should have, where to live, who to consult for advice, in fact how we should live our lives. This should include the opportunity to choose the time we die.”Simon Weston OBE, Dignity in Dying Patron
“My father, who was suffering from cancer and no longer wished to live, died as he chose: in peace and dignity, with my mother beside him. I passionately hope that, if I too were terminally ill, and was finding life unbearable, I could be allowed to die at a time of my choosing.”Rosemary Brown OBE, Dignity in Dying Patron
“Being incapable of helping a loved one to die when they are at the end of their life, suffering and asking for help is undignified and wrong, and I know this having witnessed it myself at close hand.”Zoe Wanamaker, Dignity in Dying Patron
“As a child there existed in my mind a nagging fear about this thing called death. As I have become older, I want to give an assurance to the people I love that the circumstances of their death will be 'good', to be celebrated, and their final hours will be reflective of life well lived.”Jo Brand, Dignity in Dying Patron
“I see it as almost inevitable, that society will become more understanding, and more sophisticated, about assisted dying. As with suicide, it is right to strive to find better options, but when the alternatives have run out it must surely be wrong for society to insist that people suffer.”Nick Ross, Dignity in Dying Patron
“Being incapable of helping a loved one to die when they are at the end of their life, suffering and asking for help is undignified and wrong, and I know this having witnessed it myself at close hand.”Zoe Wanamaker, Dignity in Dying Patron
“I support Dignity in Dying because I care about suffering and want the law changed so that those who presently suffer terrible deaths will in future have the option to end their suffering through ending their lives at a time and in the manner of their choice.”Lord Joffe, Dignity in Dying Patron
“It is because we believe in the dignity and value of life that we hope for a good death. This is what Dignity in Dying hopes to permit and I passionately support its aims. To linger on against my will on a half-life is no life at all.”A.N Wilson, Dignity in Dying Patron
“We live in a free society with all the choices that go with it. We choose when to marry, have children, what treatment we should have, where to live, who to consult for advice, in fact how we should live our lives. This should include the opportunity to choose the time we die.”Simon Weston OBE, Dignity in Dying Patron
“I believe that decisions about the timing and manner of death belong to the individual as a human right. I believe it is wrong to withhold medical methods of terminating life painlessly and swiftly when an individual has a rational and clear-minded sustained wish to end his or her life.”Professor A C Grayling, Dignity in Dying Patron
“I endorse the work of Dignity in Dying because I believe passionately that any individual should have the right to choose, as far as it is possible, the time and the conditions of their death. I think it's time we learned to be as good at dying as we are at living.”Sir Terry Pratchett, Dignity in Dying Patron
“Having been a member of Dignity in Dying for thirty years I fully support the campaign to ensure that all people have, what they consider to be, a good death. The option of an assisted death at the end of life would provide the choice and control we all deserve.”Miriam Karlin OBE, Dignity in Dying Patron

End-of-life care

Dignity in Dying supports more care and more choice - we believe that good quality patient centred end-of-life care should not be treated as an optional extra but as a basic right for all.

Dying people have complex needs and research has demonstrated that while some patients receive excellent care, many do not. Dissatisfaction seems to be particularly high with end-of-life care delivered in hospitals – in 2007 the Healthcare Commission discovered that 54% of all complaints in acute hospitals related to end-of-life care. Furthermore, people are not dying in their place of preference. The majority of people would like to die at home but under the current system only a minority are able to exercise this choice.

Dignity in Dying believes that an integrated approach to end-of-life care which utilises best practice will lead to increased support for patients and better patient choice.

Dignity in Dying's vision for end-of-life care:

All terminally ill people will have access to good quality end-of-life care regardless of their diagnosis, gender, age, class, or where they live, or any other factor.
Everyone will have the opportunity to create an End-of-Life Care Plan that sets out their needs and wishes at the end of life, with informed choice ensured by the universal availability of good, impartial advice services.
Health professionals would have a duty to carefully consider a person's wishes as set out in the Care Plan, such as their preferred place of care at the end of life and decisions regarding treatment.
A health and social care workforce that is well trained in end-of-life issues and able to recognise and support the emotional, psychological and spiritual needs of patients and their families.
Carers of terminally ill people would receive more support - a Carers Benefit would be introduced for people who provide 35 or more hours of care per week regardless of age; there would be legal protection against employment discrimination for those carrying out a caring role; and there would be better access to respite care for anyone who needs it.
There would be a sensible acknowledgement from health care professionals and decision-makers that palliative cannot meet the needs of all dying patients. No amount of good palliative care can address some patient's concerns regarding their loss of autonomy, loss of dignity and loss of control. Therefore, patient choice should include the right of terminally ill adults, within strict safeguards, to have the option of an assisted death.
Bereaved people would have easy access to services such as first point of call assistance, legal and financial advice and referral to counselling services if requested.