The Government's End of Life Care Strategy

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“My work as a cancer physician inevitably brought me into contact with dying people. I think that assisted dying is an important choice to be offered in the rare situations where doctors are unable to control unbearable symptoms.”Dr Lisa McDonald, Dignity in Dying Patron
“It is because we believe in the dignity and value of life that we hope for a good death. This is what Dignity in Dying hopes to permit and I passionately support its aims. To linger on against my will on a half-life is no life at all.”A.N Wilson, Dignity in Dying Patron
“My wife, Diane Pretty, had the terminal illness motor neurone disease and wanted to receive medical assistance to die with dignity. During the last weeks of her life, Diane was in considerable pain and distress. The very thing she'd fought through the courts to avoid.”Brian Pretty, Dignity in Dying Patron
“My father, who was suffering from cancer and no longer wished to live, died as he chose: in peace and dignity, with my mother beside him. I passionately hope that, if I too were terminally ill, and was finding life unbearable, I could be allowed to die at a time of my choosing.”Rosemary Brown OBE, Dignity in Dying Patron
“Over many years, I have become convinced of the need for a change in the law to protect people with terminal illness who have made the painful decision to seek help in dying. This is why, once I left government, I joined Dignity in Dying and will go on supporting their campaign until we succeed.”Rt Hon Patricia Hewitt MP, Dignity in Dying Patron
“I wish to be treated as a responsible adult and believe that people should be legally able to register their wish for an assistance with suicide, if needed. I support Dignity in Dying primarily to help change the law on assisted suicide.”Sir Michael Holroyd CBE, Dignity in Dying Patron
“Being incapable of helping a loved one to die when they are at the end of their life, suffering and asking for help is undignified and wrong, and I know this having witnessed it myself at close hand.”Zoe Wannamaker, Dignity in Dying Patron
“I believe that decisions about the timing and manner of death belong to the individual as a human right. I believe it is wrong to withhold medical methods of terminating life painlessly and swiftly when an individual has a rational and clear-minded sustained wish to end his or her life.”Professor A C Grayling, Dignity in Dying Patron
“I endorse the work of Dignity in Dying because I believe passionately that any individual should have the right to choose, as far as it is possible, the time and the conditions of their death. I think it's time we learned to be as good at dying as we are at living.”Sir Terry Pratchett, Dignity in Dying Patron
“Having been a member of Dignity in Dying for thirty years I fully support the campaign to ensure that all people have, what they consider to be, a good death. The option of an assisted death at the end of life would provide the choice and control we all deserve.”Miriam Karlin OBE, Dignity in Dying Patron
“Knowing that most of us, it seems, want the freedom to choose when and how to end our lives so as to avoid, for ourselves and our families, the harrowing consequences of a messy, drawn-out and painful deaths, that choice must be enshrined in a framework of law.”Professor Eric Bolton CB, Dignity in Dying Patron
“I believe that the exercise of free will concerning the end of life, and the timing of the end of life, is an essential human freedom. I believe that while religious dogma may dictate or limit the choice of believers it should not be imposed on others.”Rabbi Dr Charles Middleburgh, Dignity in Dying Patron
“Having seen my father die, it became very clear to me that we as society need to grasp the nettle and deal with this contentious issue in a way that is humane and acceptable to the majority of right thinking people.”Matthew Wright, Dignity in Dying Patron
“I support Dignity in Dying because I care about suffering and want the law changed so that those who presently suffer terrible deaths will in future have the option to end their suffering through ending their lives at a time and in the manner of their choice.”Lord Joffe, Dignity in Dying Patron
“As someone who helped her son to die when he could no longer face the suffering caused by Huntington's disease, I understand fully the need to have a safe, regulated right to die system that takes the pressure off family. After all, who would let their loved ones die alone?”Heather Pratten, Dignity in Dying Patron
“As a child there existed in my mind a nagging fear about this thing called death. As I have become older, I want to give an assurance to the people I love that the circumstances of their death will be 'good', to be celebrated, and their final hours will be reflective of life well lived.”Jo Brand, Dignity in Dying Patron
“I see it as almost inevitable, that society will become more understanding, and more sophisticated, about assisted dying. As with suicide, it is right to strive to find better options, but when the alternatives have run out it must surely be wrong for society to insist that people suffer.”Nick Ross, Dignity in Dying Patron
“As a doctor for over 35 years, I became increasingly aware of the failure of even the best care to deal with the suffering of some patients. The present clinical, ethical, and legal fudge - and a law which is discredited in practice - is dangerous for patients and also for professionals.”Professor Raymond Tallis, Dignity in Dying Patron
“My mother, Dr Anne Turner, chose to have an assisted death in 2006 at Dignitas in Zurich. Once my mother had been accepted for an assisted death, she was able to enjoy her life for the remaining time she had, greatly reassured that she would be spared further suffering.”Sophie Pandit, Dignity in Dying Patron
“My brother John Close died with help from Dignitas in May 2003, aged 55. Motor Neurone Disease had robbed John of almost everything which defined him as human, but the knowledge that he would be in control of his death was a source of great comfort to both of us.”Lesley Close, Dignity in Dying Patron

Government's End of Life Care Strategy

The Government's End of Life Care Strategy was launched on 16th July 2008. This is the Department of Health's first ever strategy for end-of-life care.

You can read the End of Life Care Strategy here

Dignity in Dying welcomes the publication of the Strategy, which aims to provide people with more choice at the end of life. Recent polling, commissioned by Dignity in Dying, has confirmed that 86% of the British public think it is important for people who are terminally ill and reaching the end of their lives to be able to exercise choice about their care and treatment.

On paper the Strategy is a significant step forwards, and we are delighted that many of the proposals in our Charter for Dignity at the End of Life look set to be implemented. However, delivery and implementation are vital if the Government is to ensure that people's legitimate expectations of choice, control and access to services at the end of life are met by reality.

It is absolutely vital that terminally ill patients are given the opportunity to express their preferences around end-of-life care, and that these are recorded and, wherever possible, respected. Consequently, Dignity in Dying welcomes the emphasis on care planning in the Strategy and the announced measures to support people to die in their place of preference.

We also welcome plans to ensure that carers are appropriately supported both during a patient's life and after bereavement, and that health and social care professionals at all levels are provided with the necessary education and training to enable them to provide high quality care. We are also pleased the Government has acknowledged the need to increase public awareness and discussion of death and dying - as this will encourage individuals to discuss their own preferences around end-of-life care. However, to achieve this vital goal the Government need to ensure that the proposed 'national coalition' to promote this debate is comprised of patients and patient groups as well as end-of-life care providers.

It is now time for good theory to become good practice. Responsibility for delivering the End of Life Care Strategy rests with the individual trusts. All individual trusts will need to buy into this Strategy in order to achieve universal access to good quality care at the end of life, independent of diagnosis or the place people live.

The Strategy states that quality standards and other mechanisms for measuring the progress of its implementation are currently being developed. These will need to be put in place as soon as possible, in order to measure the progress made in improving the delivery of end-of-life care.

We look forward to improvements in end-of-life care across all settings and for all patients, regardless of their condition or the place they live. It is time for the postcode lottery in accessing good quality end-of-life care to end.

You can read the End of Life Care Strategy here