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20 May 2010: GMC guidelines on end-of-life decision making are a welcome development for patient choice and control, but avoid critical question around helping patients to die

The General Medical Council (GMC) has today launched guidelines for doctors on how to treat and care for patients who are approaching the end of their lives.  These guidelines comprehensively cover how doctors must approach legally binding Advance Decisions to refuse treatment at the end of life, but fail to address how doctors should respond to terminally ill patients' requests for help to die, if they are suffering at the end of their lives.


Sarah Wootton, Chief Executive of Dignity in Dying said:


"By placing the patient at the heart of the decision making process, these guidelines will be a welcome development for greater patient choice at the end of life.  They make it clear that not only shoulddoctors respect patient's end-of-life decisions, but they must adhere to valid Advance Decisions to refuse treatment at the end of life.

 

"A study of end-of-life decision making found that in just under 3,000 cases, over a third involved the decisions where the doctor's expectation or intention was to hasten the end of life by withholding or withdrawing treatment or by giving pain relief.[1]  In these situations it is crucial that the framework set out in the GMC guidelines is in place to ensure that, wherever possible, the patient's wishes are at the centre of the decisions made.

 

"However, the same research has also found that one in ten people requested help from their doctor to hasten their death1.  The GMC's guidelines fail to address this issue for either health professionals or their patients. Following Debbie Purdy's legal victory, the Director of Public Prosecutions (DPP) issued prosecution guidance on assisted suicide, and made it clear that explaining the law on assisted suicide and legal options at the end of life was not considered encouraging or assisting a suicide.  The guidelines need to go further and advise doctors on how to react to this specific request, with sensitivity and within the constraints of the current law, given that there is no doubt they'll be asked." 

 

Dr Ann McPherson, Dignity in Dying Patron, former GP and cancer patient said:

 

"The guidelines need to address the issue of assisted dying.  As a GP I have been asked on several occasions to help people to die, and we should be able to talk to patients about their options at the end of life without contravening the law."

 

Ends.

 

Notes to editor:

 

About Dignity in Dying:

 

  • Dignity in Dying campaigns for greater choice, control and access to services at the end of life. It advocates providing terminally ill adults with the option of an assisted death, within strict legal safeguards, and for universal access to high quality end-of-life care.  
  • Dignity in Dying has over 25,000 supporters and receives its funding entirely from donations from the public.
  • Surveys consistently show that at least 80% of the UK population supports a change in the law on assisted dying.

 

 

The GMC guidance

 

 

 

  • The guidance will come into effect from 1 July 2010.

 

Compassion in Dying

 

 

Compassion in Dying provides Advance Decisions free of charge at: www.compassionindying.org.uk

 

Media Contacts:

For all media enquiries, please contact Jo Cartwright on 020 7479 7737 / 07725433025 or at jo.cartwright@dignityindying.org.uk

 


[1]  Seale C (2009) Hastening death in end-of-life care: A survey of doctors Social Science & Medicine69(11): 1659-66

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