Dignity at the End of Life
Dignity in Dying's 'Charter for Dignity at the End of Life', published in June 2008, highlights the need for all people to be given greater choice, control and access to high quality care at the end of life.
“We want to see end-of-life services that are sensitive, responsive and accessible to all. Individuals need to be clear about their wishes, whilst Government must ensure that services meet people’s needs at death, putting choice, control and access at the centre of end-of-life care.
Sarah Wootton, Chief Executive, Dignity in Dying
In his foreword to the Charter, Rt Hon Lord Norman Warner, former Health Minister, wrote:
"The Charter for Dignity at the End of Life places choice, access to services and personal control at the heart of improvements to end-of-life care. I hope that its recommendations will be carefully considered by the providers, policy decision-makers and users of our much valued and treasured National Health Service."
Rt Hon Lord Norman Warner
The 'Charter for Dignity at the End of Life' focuses on 10 key requirements. The implementation of these 10 points is essential if people are to gain comfort, and piece of mind, in the knowledge that they will be able to have a dignified death.
10 Key Points:
- Everyone should have the opportunity to create an End-of-Life Care Plan setting out their needs and wishes for the end of life, and should have access to good advice services to inform their choices.
- Health professionals should have a duty to carefully consider people's wishes as set out in their End-of-Life Care Plan, such as their preferred place of care at the end of life.
- Government should promote awareness of Advance Decisions so that everyone knows that they have a legal right to refuse treatment.
- Advance Decisions must be recorded in a central national health register so that health professionals can take them into account in treatment.
- Building on the principles of choice and control at the end of life, Parliament must give terminally ill, mentally competent people the right to have an assisted death.
- More resources should be made available for palliative care – Government must deliver on its manifesto commitment to double funding for palliative care and all political parties should pledge to match this investment.
- Decision makers should end the postcode lottery in accessing palliative care services by providing a consistent and transparent system for commissioning services.
- Carers of terminally ill people should receive more support with a Carers' Benefit introduced for all those providing 35 or more hours of care per week regardless of age; legal protection against employment discrimination for carrying out a role; and better access to palliative care.
- Health and social care professionals should have access to training on end-of-life issues including offering emotional, psychological and spiritual support to patients; communication skills and high-quality bereavement skills.
- Bereaved people should have easy access to advice services offering first point of call assistance to other support such as legal and financial advice and referral to counselling services, as appropriate.




















