Lisa Cook, 42, from Huddersfield, has the gene for Huntingdon's Disease. The disease can lead to degeneration of muscles. Lisa wants the right to choose when and how she dies.
"Although I am symptom free at present, it is clinically certain that I will develop this incurable illness. I don't when it will happen, but it definitely will happen. I have grown up in a family where I have seen sufferers of Huntingdon's Disease endure a long and slow decline.
I have seen people go from being busy, lively, active, entertaining, well loved people to twitching, bedridden, doubly incontinent, lonely, skeletal, incoherent shadows of their former selves. I live on a day-to-day basis with the knowledge that that is my future.
There is little I can do about my genes but I want to do something about the amount of suffering that my family and I will have to endure as a result of Huntingdon's Disease. For myself, I firmly believe that the degradation and indignity this condition imposes is a greater concern than death itself.
I like to think that I have lived my life with dignity and I would like to be able to die with dignity. The law needs to be changed to allow me and the many others like me the chance to choose the manner and timing of my death."
Read Lisa's story in The Huddersfield Daily Examiner: http://www.examiner.co.uk/news/local-west-yorkshire-news/2009/03/14/fartown-campaigner-s-support-for-mps-debate-on-assisted-suicide-86081-23141089/
Read Lisa's letter in the Independent: http://www.independent.co.uk/opinion/letters/letters-the-right-to-die-982066.html
The accounts made in the personal stories section of the Dignity in Dying website reflect the views of the authors. The views of Dignity in Dying may differ. For Dignity in Dying's mission please go to: http://www.dignityindying.org.uk/about.html
Should you want to contact any of the people featured in these pages, or wish to share your own story with us, please contact Jo Cartwright:
020 7479 7737 or 07725 433 025