A carer is someone who provides unpaid care by looking after an ill, frail, disabled or dying family member, friend or partner.
The Government's End of Life Care Strategy
The Government's End of Life Care Strategy recognises the extremely important role of family, close friends and informal carers for people approaching the end of life. The Strategy states that carers should be closely involved in decisions about the care and treatment of the person they are caring for. They should also be given information about the likely progress of the condition of the person they care for and about services which are available to them.
Government is currently creating an information service for carers, which will provide full and easy access to information for carers through a single national telephone number and website. Your local authority should also ensure that you receive all the information you are entitled to as a carer - the person you are caring for does not have to be receiving services from the local authority, and neither do you, in order for you to be entitled to this information.
More details on the Government's End of Life Care Strategy can be found here.
Financial support
Carer's Allowance is a benefit available to some people who provide care for someone who is ill and receiving Disability Living Allowance or one of a range of other selected benefits.To be eligible for Carer's Allowance you must be at least 16 years old, not enrolled as a full-time student, resident in the UK, not currently receiving other benefits, and you must provide care for a minimum of 35 hours per week. You cannot claim Carer's Allowance if your weekly income reaches a certain threshold and if you are in receipt of certain other social security benefits such as State Retirement Pension.
You can claim Carer's Allowance online: http://www.dh.gov.uk/en/Healthcare/IntegratedCare/Endoflifecare/index.htm. Or you can contact the Carer's Allowance Unit on 01253 856 123 and they will send you a claim form.
As a carer you and the person you care for may be eligible for additional benefits such as help with council tax and fuel bills. For more information, enquire at your local social security office or contact the Benefit Enquiry Line on telephone number: 0800 88 22 00
Other supportIf you provide a regular and substantial amount of care for someone aged 18 or over, you are legally entitled to ask your local council's social services department for a carer's assessment.
Based on your assessment the social services team will decide if you are entitled to support. This could include giving you a break from caring, making adaptations to your home, or providing emotional or practical support.
For more information contact your local social services department or visit http://www.dh.gov.uk/en/Healthcare/IntegratedCare/Endoflifecare/index.htm.
Employment
Combining work and looking after someone is often very difficult. Since April 2007, carers for terminally ill people have a statutory right to ask their employer for flexible working to help them balance their work and caring responsibilities. Under this right, you can ask your employer to change your working pattern, including hours and location of work. You will need to write to your employer and set out the changes you would like and how these changes will affect your job. You can only make one request per year and, if accepted, the changes will mean a permanent change to your employment contract, so it is important to think carefully before applying. There is a set procedure that all employers must follow and requests can only be refused for specified reasons. If your employer refuses your request, you can appeal their decision.
As a carer you can also qualify for the right to to take a 'reasonable' amount of time off work to deal with an emergency involving a dependant. To use this right to time off, you must inform your employer as soon as possible after the emergency has happened. It is at your employer?s discretion whether the leave is paid or unpaid.
If you are a parent looking after a child, you are entitled to a number of weeks of parental leave. Parental leave is usually unpaid but your employer can offer to pay you. You must give at least 21 days' notice to your employer to take parental leave.Representing a loved one who is not mentally competent
If the person you are caring for is not mentally competent and they have not appointed you as their attorney (using the Lasting Power of Attorney) then you do not have any formal say over their treatment. However, most doctors will include carers and loved ones in discussions about treatment decisions.If you strongly disagree with the treatment decisions doctors are making regarding a loved one who is no longer mentally competent, you may need to apply to the Court of Protection. The Court was set up under the Mental Capacity Act to resolve such disputes quickly.
Other sources of information and support
The following organisations provide information and support to carers:
Carers UK
Tel: 0808 808 7777
Website: http://www.carersonline.org.uk/
Counsel and Care
Tel: 0845 300 7585
Website: http://www.counselandcare.org.uk/
For more information on Carer's Allowance and benefits:
Carer's Allowance Unit
Tel: 01253 856 123
Website: http://www.direct.gov.uk/

























